WSA is a 501(c)(3) organization. Caregiver support groups are underutilized, often because people think they don't have the time or feel self-conscious about speaking about personal subjects with strangers. All rights reserved. Copyright 2018-2023. Candid partnered with CHANGE Philanthropy on this demographic section. Well Spouse Association. If you decide to continue attending, then join the Well Spouse Association as a Supporting Member. 1988 - 2023 Terri Corcoran is secretary of the Well Spouse Association Board of Directors, co-editor of its newsletter, Mainstay, and co-leader of the Northern Virginia Well Spouse Support Group. To achieve this mission the Well Spouse Association: coordinates a national network of Support Groups facilitates a Mentor program publishes a newsletter (Mainstay) hosts a website (, https://wellspouse.org/2014-wsa-in-the-news/find-a-group-near-you.html. The higher the dose of oral semaglutide, the more side effects seem to come with it. in nonprofit board leadership and governance, to create this section. NORD is a registered 501(c)(3) charity organization. These might bring together people in specific caregiving situations and relationships, such as military caregivers or adult children caring for elderly parents. Children are an often-overlooked subset of the family caregiver population. Four powerful questions that require reflection about what really matters - results. You are leaving AARP.org and going to the website of our trusted provider. Prior to the pandemic, most of our events were held in person, and people loved to meet other members. Here are some typical caregiver reactions to referrals to support groups and possible ways of seeing things differently. Phone: 202-588-5700. We do accept those whose partners have passed away. We offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day. Your caregiving duties or emotions are interfering with your work and social life. You may prefer one approach over the other. News for Caregivers Health. Today's top 47 Technician jobs in Valencia, Valencian Community, Spain. Has the board conducted a formal, written assessment of the chief executive within the past year ? Register now. This organization is required to file an IRS Form 990 or 990-EZ. We offer peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses . As Jacobs puts it, There are a lot of introverts in this world. Try to push yourself through your resistance and take the plunge. Check the websites of major disease charities or contact their chapters to find support groups near you. What are the organization's current programs, how do they measure success, about suicide prevention for teens, parents, and others. This includes our website, which hosts a online forum for members, an active Facebook group, a Reddit subreddit, and a Twitter feed. Youre overeating/under-eating, using drugs or alcohol to cope, and feeling anger, anxiety or depression. (Don't see an email in your inbox? A well-run, general caregiver group may meet your needs just fine. Click here for our calendar of WSA Support Group meetings. We have been able to use smaller Zoom meetings for some events to encourage members to build connections between each other directly. depression, family, divorce, grief, etc.). Enter your zip code or city at the federal government'sEldercare Locatorto find the nearest Area Agency on Aging and other state and local services for seniors and caregivers. Well Spouse Association. WSA coordinates a network of peer support groups for well spouses and spousal caregivers. We provide support whether you feel like a caregiver or not. And help from caregiving communities is widelyavailable online. You no longer have time or a place to be alone for even a brief break. Well Spouse Association provides support and resources to people of all ages who care for partners with chronic illness or disability. WSA works to make health care professionals and the general public aware of the great difficulties caregivers face every day. While we might not be able to describe what hope is, we are able to see what HOPE IS If we look closely, we can find it in the people and things around ussomeone who inspires us or something that reminds us that it is not all hopeless. 1994. Today's top 3,000+ Research jobs in Valencian Community, Spain. What matters is that you feel you need support from a community of people who understand. Contact, The Well Spouse Association, a nonprofit 501(c)(3) membership organization, advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner. If you've just found the Well Spouse Association and want to learn if it's a good fit for you. Created with by BASE HORN MEDIA. The Well Spouse Association, a national support organization for people caring for spouses, facilitates a network of support groups around the country, all run by volunteers. In addition to the resources listed above, the resources below are divided into three main sections -Specialized support group resources, Other helpful resources, and National Toll-Free 24 hour hotlines. Instead of loving and caring, you feel exhausted and resentful. Eight were parents and the founders ranged in age from 30 to 57 - an average of 45 years old. She has written many articles and spoken on . Did you know that Well Spouse Association coordinates a network of more than 20 support group meetings each month, in towns and cities all over the US? We are an inclusive and welcoming community - no matter your age, partnership arrangement, sexuality, orientation, gender, or religious beliefs. Washington, DC 20036 The financial impacts of caregiving are different for well spouses from other types of caregivers too - often the partner with illness and the caregiver must give up paid employment (at the same time that expenses increase due to medical costs). Click here to resend it.). To find a WSA Support Group click the red banner below; enter your zip code or select "Geolocate me". Everyone who leads our support groups or attends our meetings is either a current or former well spouse or caregiver. Learn more about Sustainable Development Goals. Many people find peer support a helpful tool that can aid in their recovery. Sometimes people try a support group meeting but decide its not the right time for them to join WSA. Support groups give caregivers ideas for sustaining themselves in order to continue coping well. Need the ability to download nonprofit data and more advanced search options? Finding the right support group can be helpful. The Well Spouse Association, a nonprofit 501(c)(3) membership organization, advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner. Another convenient alternative is online support groups that caregivers can access from the comfort of their own homes, as their schedule allows. We offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day. Well Spouse Association (WSA) Telephone: 1-800-838-0879. Youre not alone, and our caregiver community can help. and who do the programs serve? New Nurse jobs added daily. Most caregivers face similar challenges emotional stress,financial pressureandnavigating the health care system, to name a few. She was a full-time caregiver for her husband for almost 16 years until his peaceful death at home in 2016. The nonprofit coordinates a national network of support groups and does everything from facilitating a mentor program to publishing a newsletter to keep people informed . Get out of your comfort zone. Search online. Youll find people who understand. Your coping methods have become destructive. Danbury, CT 06810 Online and telephone caregiver groups. Some, though, may ask you to join their organization and pay dues. The important thing is to find a space where you can share stories, feelings and advice with people who can relate and won't judge. Well Spouse Association is a peer support organization, and nothing shared via Well Spouse programs or social media is intended to replace medical, financial, or legal advice provided by experts or professionals. we invite you to try a Support Group Meeting. Does the group have a facilitator? A GuideStar Pro report containing the following information is available for this organization: This information is only available for subscribers and in Premium reports. These groups can offer priceless support to people who can't travel to a face-to-face meeting (or who prefer not to during the pandemic) or need to talk to someone during off-hours. Help us get you more of the nonprofit information you need, including: An email has been sent to the address you provided. Email contact available with a Pro subscription, Legal name of organization: Well Spouse Association. The Well SpouseAssociation, a nonprofit 501(c)(3) membership organization, advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouseor partner. Well Spouse Association. What prevents more such groups from succeeding? All rights reserved. We offer peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day. We offer peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day. You may take things out on your partner. The Well Spouse Association is a New Jersey-based organization connecting caregivers through support groups. Summary . Rosalynn Carter Caregiving Award/Natl Quality Caregiving Coalition Chronic illness changes relationships. We offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses . The Facebook account should be ONLY in the well spouse's. Amid the COVID-19 pandemic, many groups have moved on to video meeting platforms like Zoom. National Toll-Free 24 Hour Hotlines: Child-Help USA at 1-800-422 . For more information about respite care. Analyze a variety of pre-calculated financial metrics, Access beautifully interactive analysis and comparison tools, Compare nonprofit financials to similar organizations, Revenue and expense data for the current fiscal year, CEO, Board Chair, and Board of Directors information, *with the ability to download the data for 2022, 2021, 2020, 2019, 2018. Some have a trained leader; others don't. Do not be discouraged if the first support group you find doesn't quite feel right. No matter what you do, it feels like it isnt enough. They also invite members to start their own local support groups with a step by step guide. In the last pages ofMainstay she asked other well spouses to send a postcard if they too wanted to create an organization just for spousal caregivers. Click the balloon for the name of the group, and click the word 'details' for complete information on meetings. Support groups are open to anyone, but they are often focused on specific topics (i.e. WSA coordinates a network of peer support groups for well spouses and spousal caregivers. All Rights Reserved. We thank Maggie Strong for her powerful words more than 30 years ago with her work, we well spouses know that we are no longer alone. Well Spouse Association provides support and resources to people of all ages who care for partners with chronic illness or disability. Maggie begana book tour and appeared on national TV programs, bringingattention to the plight of the spousal caregiver. In the next 24 hours, you will receive an email to confirm your subscription to receive emails The WSA publishes a quarterly newsletter entitled Mainstay; sponsors support groups throughout the country and organize an annual conference and other regional meetings. Sometimes a support group doesnt feel like a good fit. The Well SpouseAssociation is a national 501(c)(3) nonprofit organization founded in 1988 by author and spousal caregiver, Zane Kotker (writing under the pseudonym Maggie Strong), whosehusband was diagnosed with Multiple Sclerosis. 1988 - 2023 New Research jobs added daily. When spouses or partners transition to caregiver and patient roles, they often face the loss of that singular intimate relationship and the companionship it brings. The Well Spouse Association is a national 501 (c) (3) nonprofit organization founded in 1988 by author and spousal caregiver, Zane Kotker (writing under the pseudonym Maggie Strong), whose husband was diagnosed with Multiple Sclerosis. An Interview with WSA's President Elect (July 2021). There are support groups run by faith institutions, medical centers, disease associations,adult day care centers, social service agencies, and by businesses for their employees, among other entities. We've been in their shoes, and we can share, says Dorothy Saunders, the association's former copresident and a caregiver for more than 40 years. Click on the link in that email Call first if you're concerned, but most likely they'll welcome you.) Candid has made improvements to the race and ethnicity options. The people, governance practices, and partners that make the organization tick. Newsletter. Please enable Javascript in your browser and try Disease organizations such as theAlzheimer's AssociationandCancerCareoften offer tools to find in-person and online support. Latino Alzheimer's and Memory Disorders Alliance, Family Caregiver Alliance: LGBT Community Support, More support for older caregivers could boost economy, Reducing green-eyed envy in family caregiving, When caregivers feel used and angry about it. They knew it would not be easy,butthey committed to reach out to as manyother well spouses as they could. If you've just found the Well Spouse Association and want to learn if it's a good fit for you,we invite you to try a Support Group Meeting. Caregivers often can't speak openly with family members about their emotional reactions, and a support group provides a relative degree of anonymity.". Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? The Well Spouse Association has been around since well before what we've come to call "The Internet Age." Joann Landers, leader of the Well Spouse support group in Springfield Illinois, has been a spousal caregiver for over 30 years. You'll want one that follows Las Vegas-style rules: What's said in the group stays in the group. You may be able to find a support group through a local church or hospital, or at the website of the Well Spouse Association, which coordinates a national network of groups for spousal caregivers. WSA also provides continuing support for members whose spouses have died. 55 Kenosia Avenue Leverage your professional network, and get hired. We also encourage you to also take a look at Mental Health America'sLiveYourLifeWellprogramto learn more about the value of connecting with others and other helpful wellness tools. Join a. "We've been in their shoes, and we can share," says Dorothy Saunders, the association's former copresident and a caregiver for more than 40 years. Today's top 33 Nurse jobs in Valencia, Valencian Community, Spain. Many organizations try to address this objection by providing simultaneous caregiver and care-recipient groups or activities in different rooms. Our Support Groups are open to all WSA Supporting Members as a membership benefit (please contact the WSA Office if membership is a financial hardship). Keep an open mind. A map will appear. In a relationship based on mutual love and sharing, married couples often struggle with maintaining a proper balance between them even in times of health. Learn about the organization's key goals, strategies, capabilities, and progress. I would be wary if a fee is being charged, says John Schall, chief executive officer ofCaregiver Action Network, a national organization working to improve the lives of the nation's 53 million unpaid family caregivers. Of the thousands of caregiver support groups run by churches, senior centers, hospitals and disease-specific organizations, too few fully achieve their potential. You can also manage your communication preferences by updating your account at anytime. InOctober 1988, ten of thoselocal chapter organizers and more "well spouses" met face-to-face in Pendle Hill, PA for the very first Well Spouse conference. There's no requirement for group members to pour out their hearts. Previous article: WSA Mourns the Loss of Board Member Rona Auster - April 2023, July 2023 - WSA Book Discussion featuring Journalist Ann Brenoff, WSA Mourns the Loss of Board Member Rona Auster - April 2023, June 2023 - DC Premiere of the Film "n of 1", CLICK HERE TO FIND A SUPPORT GROUP NEAR YOU, WSA Book Discussion with Journalist Ann Brenoff. We produce and host webinars and symposia on topics of interest to well spouses. If you decide to continue attending, then join the Well Spouse Association as a, To find a WSA Support Group click the red banner below; enter your zip code or select. Condition-specific groups. WSA is a 501(c)(3) organization. We also have nationwide support groups for special populations, including one for younger well spouses (ages 20-50+) and one for former well spouses (due to death, divorce, or separation). Caregiving for your wife, husband, or partner impacts the decision to have children, the way children are raised, and where and how one lives, works, and retires. With much encouragement, she wrote a book,Mainstay: For the Well Spouse of the Chronically Ill, sharing her experiences as a well spouse. There are few areas of life that are left untouched by the caregiver/patient role in partnered relationships. Its focus is on the 6 million Americans caring for a spouse or partner, which brings . In the trial of people who were overweight or obese, 80 percent of those who took oral semaglutide reported . It has to do, in part, with the reluctance of the caregivers themselves. Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. What you say, and what others say, at each support group meeting, is confidential. Ourmembers can share their thoughts and feelings openly with others facing similar circumstances in a supportive, non-judgmental environment. There are more than you may suspect: The2020 Caregiving in the U.S. reportfrom AARP and the National Alliance for Caregiving estimates that more than 3.3 million people under age 18 in the country are providing care to an adult recipient. coordinates a national network of WSA Support Groups, hosts a website (www.wellspouse.org) withresources forcoping and survival skills,which includes an online chat forum for spousal caregivers, organizes a national conference for caregivers, produces symposia and webinars for caregivers, maintains a social media presence for members and for outreach to the public, provides continuing support for members whose spouses have died, advocates on behalf of spousal caregivers, seeks out new initiatives tohelp caregiver spouses and their families cope with the emotional and financial stresses associated with chronic illness and/or disability. Almost 6 million people in the US care for an ill or disabled partner, "A Conversation with WSA" - Pantsuit Politics podcast (June 2022), WSA addresses the unique challenges that well spouses face every day. Next article: Starting a WSA Support Group, July 2023 - WSA Book Discussion featuring Journalist Ann Brenoff, WSA Mourns the Loss of Board Member Rona Auster - April 2023, June 2023 - DC Premiere of the Film "n of 1", WSA Book Discussion with Journalist Ann Brenoff. "Balancing a full time job, three children and caregiving, I was tired, lonely and afraid. And ask about the group's confidentiality policy. (And don't assume you need to belong to a congregation or have sought care at a medical center to join a caregiver group there. We offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses . Groups targeting different kinds of caregivers. Sign up for caregiving tips from NIA. We offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses . Find A Meeting At:https://wellspouse.org/2014-wsa-in-the-news/find-a-group-near-you.html, 2023 by Aibtikar Foundation. coordinates a national network of WSA Support Groups, hosts a website (www.wellspouse.org) withresources forcoping and survival skills,which includes an online chat forum for spousal caregivers, organizes a national conference for caregivers, produces symposia and webinars for caregivers, maintains a social media presence for members and for outreach to the public, provides continuing support for members whose spouses have died, advocates on behalf of spousal caregivers, seeks out new initiatives tohelp caregiver spouses and their families cope with the emotional and financial stresses associated with chronic illness and/or disability, July 2023 - WSA Book Discussion featuring Journalist Ann Brenoff, WSA Mourns the Loss of Board Member Rona Auster - April 2023, June 2023 - DC Premiere of the Film "n of 1", WSA Book Discussion with Journalist Ann Brenoff. Seeking feedback from people served makes programs more responsive and effective. The Well Spouse Association, a nonprofit 501(c)(3) membership organization, advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse or partner. Here are some places to connect with support groups serving particular caregiving communities or the larger caregiver population. The National Mental Health Consumers' Self-Help Group Clearinghouse also maintains aDirectory of Consumer-Driven Serviceswhich includes peer-run organizations throughout the United States that offer a variety of supportive services and activities, including peer-run support groups. Well Spouse Association. Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? The Well Spouse Association is focused on caregivers caring for a spouse, offering education and resources. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder. Click the balloon for the name of the group, and click the word 'details' for complete information on meetings. Already have a GuideStar Account? Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? New Technician jobs added daily. So, take some time and do some research to find the right one for you and your current situation. GuideStar worked with BoardSource, the national leader about GuideStar Pro. Their website contains information about peer-to-peer support groups, and educates healthcare professionals and the general public about the special challenges and unique issues "well" spouses and caregivers face every day across the country. To register or find out more information about the conference, visit Well Spouse Association at wellspouse.org. Javascript must be enabled to use this site. I'm always at his beck and call. What significant change resulted from feedback? These support groups meet on a monthly basis in person, by Zoom, or by phone. Your partners condition is worsening despite your best efforts. The Well Spouse Association is funded by membership fees, donations, foundation and corporate grants, bequests, endowments and commemorative gifts. Who works and leads organizations that serve our diverse communities? Pong joined Facebook groups that were focused on cancer and esophageal cancer (the type of cancer her dad had). We provide support whether you identify as a caregiver or not. Caregiving.com: An online community of supportive individuals who provide care for a family member or friend. While on tour, she met several well spouses who were interested inorganizing local chapters of "National Well Spouses". Don't dismiss a support group just because it's not perfectly targeted to you, especially if you don't have many options in your area. We all need hope because HOPE IS something that inspires us to dream above the hardships that weve experienced in order to find our purpose. receive communications related to AARP volunteering. Board Secretary, "Mainstay" Newsletter Editor, Well Spouse Association The spousal relationship is unique, and special challenges arise when one partner suffers from long-term illness. Join a local support group, or join one of our nationwide support groups, which are listed below. Caregiving for your wife, husband, or partner impacts the decision to have children, the way children are raised, and where and how one lives, works, and retires. With much encouragement, she wrote a book, July 2023 - WSA Book Discussion featuring Journalist Ann Brenoff, WSA Mourns the Loss of Board Member Rona Auster - April 2023, June 2023 - DC Premiere of the Film "n of 1", WSA Book Discussion with Journalist Ann Brenoff. WSA coordinates a network of peer support groups throughout the US and Canada attended by members who are all spousal caregivers or well spouses. Once you confirm that subscription, you will regularly Please note that NORD provides this information for the benefit of the rare disease community. Who are the people you serve with your mission? This may be true for a caregiver at a given time. *Inclusion on this list does not imply endorsement by the American Cancer Society. Learn More 25% off your first healthy meal delivery order of $99+, $20 off your first food delivery order of $50+. Phone: 203-744-0100 That doesn't mean it will remain true as caregiving goes on for months and years. Caregiver education groups. Want to see how you can enhance your nonprofit research and unlock more insights? New Marketing jobs added daily. 4 were here. Suite 500 There are no more happy times with your partner. When spouses or partners transition to caregiver and patient roles, they often face the loss of that singular intimate relationship and the companionship it brings. to search for ways to make a difference in your community at Well Spouse allows you to find a local support group according to zip code or the state you live in. Sign up for AARP's monthly Money Matters newsletter to help manage your finances with confidence. All rights reserved. Where can I learn more information about clinical trials. If you decide to continue attending, then join the Well Spouse Association as a Supporting Member. The organization also works to make health care professionals and the general public aware of the great difficulties caregivers face. The Well Spouse Association, a nonprofit 501(c)(3) membership organization, advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse or partner. You refuse to think about your own needs and desires because that feels like a selfish act. 1779 Massachusetts Avenue Get CaregiverSD in your inbox on Mondays. You'll start receiving the latest news, benefits, events, and programs related to AARP's mission to empower people to choose how they live as they age. A more appealing option might be caregiver education groups, at which invited speakers address relevant topics, such as stress management or dealing with Medicare. If you've just found the Well Spouse Association and want to learn if it's a good fit for you, we invite you to try a Support Group Meeting. WSA is a 501(c)(3) organization. Well Spouse Association has support groups as well as educational materials and online articles for those who care for a husband, wife, or partner. Maggie understood that to simply write a book was not enough - where would those well spouses turn after they read her book? We offer this support through our programs, events, and resources. We offer peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day. We shifted to a Zoom model for our events during the pandemic which has been well-received, with one exception - surveys showed that people wanted our larger events on Zoom to have more member interaction. The Well Spouse Association, a nonprofit 501(c)(3) membership organization, provides peer support and advocates for individuals caring for spouses or partners with life-changing chronic . Almost 6 million people in the US care for an ill or disabled partner. Support groups for young caregivers. The financial impacts of caregiving are different for well spouses from other types of caregivers too - often the partner with illness and the caregiver must give up paid employment.
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